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Intro to Internet Resources for Brain Tumor Survivorship presented by Samantha Scolamiero First you need a computer and/or Internet access Where to get free or low cost computers
Tip: Your state or area may have other organizations like these. In the U.S. your local United Way office may have some suggestions. Tip: Some organizations have long waiting lists for loaner computers. Explain that you have a brain tumor or cancer and tell them what you will be using it for. Once the infrastructure is in place our "BRAIN TRUST Buddies Program" will match people and companies who want to donate computers with patients and families in their communities who need them. We hope to help people more quickly and effectively by developing efficient distribution strategies, buddy training programs and buddy follow-up. Sci-Tek, in New Hampshire has low
cost refurbished computers. Pentiums for about $500 Internet Access (Note: The Healing Exchange BRAIN TRUST does not advocate any particular Internet Service Provider.) Some local Internet service providers In Massachusetts:
Tip: Computer Currents magazine available free at computer stores and community centers has an extensive listing in each issue with phone numbers and rates. Some national internet service providers:
There is an extensive listing of over 680 providers from all over the world at: http://www.resnet.cornell.edu/IAP/INAccess.html
You don't need internet access or a computer at home!
Free Email Only JUNO is a company that offers free "email only" service. To run JUNO you need at leas t 386 PC processor or higher, Windows 3.1 or higher, 4MB of RAM and 10MB free disk space. To get a free JUNO start up kit call 1-800-654-JUNO People find this helpful if they can get internet access at work, but want to have an email address at home, or if people want an email address that they use specifically for subscribing to an email support group. You can still get a lot of support and information having email with out full internet access.
Online Resources
Support and information for brain tumor survivors, their supporters and caregivers -- both lay and professional -- takes many forms via the internet. Forums:
(Initiated by Mary Lynn Bower, JPA, cerebellum, 4-93, email: hlthsrch@ais.net) Open 24 Hours at NO cost Internet Chatroom Scheduled Meeting: Sunday at 9 PM ET, 8 CT, 7 MT, 6 PT, 4 HT It is on AnotherNet. The name is #braintmr. Servers are: •neato.ca.us.another.net •sunrise.ca.us.another.net •together.vt.us.another.net •irc.another.net (This is a random server and should be able to pick a server to connect you with AnotherNet.)
"Braintumor" chats are scheduled nightly at 10 PM Eastern Time and can accommodate up to 23 members at one time. This chat room which was founded March 20, 1996 by Sam Depino, the spouse of a brain tumor survivor, Carol. If you are searching for others to share your brain tumor experience with, caretaker or patient, join us by going to "People Connections" and then "chats" followed by "private rooms" and typing in the word "braintumor".
reference info, clinical data, pointers, support info T.H.E. BRAIN TRUST http://www.braintrust.org Jim Kenzig’s links http://www.virtualtrials.com/btlinks MGH Neurosurgery http://brain.mgh.harvard.edu Black Labs http://www.boston-neurosurg.org Dr. John Mangiardi http://www.brain-surgery.com Musella Foundation/ Clinical Trials http://www.virtualtrials.com Dr. Tatter’s pages www.bgsm.edu/bgsm/surg-sci/ns/ns.html Brain Injury Info http://www.tbi.org/ Pituitary Network www.pituitary.com
Good Luck in your Online quest for information and support! ONWARD! ~Samantha Scolamiero |
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