The Five W's
WHAT
does T.H.E. BRAIN TRUST do?
-
We help People communicate about brain tumors and
related conditions via the Internet to promote a healing
exchange of information and support.
WHO
participates?
-
Patients/survivors affected by brain tumors and related
conditions (from AVM to xanthroastrocytoma)
-
their families, supporters and caregivers
-
health care professionals and researchers
-
interested members of the general public
-
The Organization is driven by volunteers
HOW?
-
Our primary services are delivered via email support
groups on the Internet.
-
We also train People how to use the Internet to get
information and support.
-
Our funding comes mainly from individuals in the general
public, but occasionally from foundations and companies.
WHEN
and WHERE?
-
Our online services run 24 hours a day.
-
We do training workshops at conferences and in clinics.
-
People from all over the world who have access to
email are able to participate.
WHY?
We believe:
-
Informed health care consumers may obtain better care.
-
Patients and families who have good psychosocial support
may live longer and have a better quality of life.
-
Online support may be easier than face to face.
-
Support is available 24 hours a day in ways not available
without technology.
-
There are no geographical boundaries when it comes
to support.
-
Health professionals who participate learn patient
issues.
Note:
At this time most of our resources serve those interested
in brain tumors. However, The Healing Exchange BRAIN
TRUST does not include the word "tumor" in
our name so as to intentionally include related brain
conditions, and subseqent acquired brain injury, because
there is incredible potential for a healing exchange
of information and support regardless of one's specific
primary medical diagnosis. There are many common secondary
medical and social issues for People dealing with brain
tumors, cysts, lesions, etc. and the subseqent aquired
brain injury which has a tremendous impact on individuals
and families.
