Ependyparents Online Support Group
SUMMARY
Group communication is by a private email list hosted by
T.H.E. BRAIN TRUST, a 501(c)(3) nonprofit organization
specializing in internet based and patient oriented brain tumor support groups.
ABOUT THE LIST
The Ependyparents online support group is a private email list for parents of children with Ependymoma. We are a group of parents
looking for knowledge and information on behalf of our children who are too young to make
decisions.
Approximate Group Size: about 30
Average Message Frequency: about 5 per week