The Healing Exchange BRAIN TRUST runs a number of
online support groups. For more information, take a
look at our Special Interest BRAIN TRUST Groups section.
The BRAINTMR list (BRAINTMR@mit.edu) is a forum to discuss topics related to all types of brain tumors whether labeled "benign" or "malignant." Brain tumor patients, their families & supporters, medical and allied health professionals**, medical educators, and researchers who study brain tumor growth or treatment all share their experiences and insights through this unique forum.
**(Interested health professionals include: neurosurgeons, nurses, social workers, primary care physicians, pathologists, oncologists, psychologists, rehabilitation therapists etc.)
BRAINTMR is open to all and is moderated, not edited.
There is no charge for this service. If you are
interested in becoming a member
of the BRAINTMR mailing list, please click here.
Here are just a few examples of ways in which BRAINTMR works for people:
- Assists patients and families dealing with the same tumor type in “meeting” each other
- Serves as a message board detailing WHO is doing WHAT brain tumor research WHEN
- Serves as a sounding board for the emotional aspects of patients' brain tumor treatment
- Provides a forum for discussing the impact of brain tumors on individuals, society, and medicine
- Provides a space for the discussion of other intracranial malformations (such as the AVM)
BRAINTMR began in October 1992 helmed by Samantha J. Scolamiero, a brain tumor survivor. On May 15, 1993, braintrust.org was up and running on the web. There are about 1,700 active subscriptions from six continents on the list. These members include several redistribution lists, as well as individual subscriptions for entire research organizations and brain tumor foundations. On average, our lists deliver 50-100 messages per day representing people who generously offer their expertise and experience, providing vital information and support.
Anyone willing to talk about brain tumors is welcome to join and expand our discussions.
Subscriptions and list archives are managed through a web interface: