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"Brain
TumorResearch/Support" BRAINTMR@mitvma.mit.edu
Better know as "The
"BRAINTMR Mailing List" , created May 1993 by: Samantha J. Scolamiero
BRAINTMR was initiated in October 1992 by Samantha J. Scolamiero, a brain tumor survivor.
It came on-line May 15, 1993.
There are about 1000 active subscriptions from six continents on the list. These
include several redistribution lists and individual subscriptions for entire research
organizations and brain tumor foundations.
There are on average 50-100 messages per day. Many people generously offer their
expertise and experiences to provide information and support. Anyone willing to talk about
brain tumors is welcome to expand our discussions.
The BRAINTMR list is a
forum to discuss topics related to all types of brain tumors whether labeled
"benign" or "malignant." Information and experience is shared among
brain tumor patients, their families & supporters, all kinds of concerned medical and
allied health professionals**, medical educators, and researchers who study brain tumor
growth or treatment.
BRAINTMR is open to all and is moderated by the listowner, not edited. There is no
charge for this service. Please read our Guidelines for the BRAINTMR
list
** (Interested
health professionals include: neurosurgeons, nurses, social workers, primary care
physicians, pathologists, oncologists, psychologists, rehabilitation therapists etc.)
Here are just a
few examples of how BRAINTMR is used:
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For patients and
families dealing with the same tumor type to "meet"
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To find out WHO is doing
WHAT brain tumor research
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To address emotional
aspects of patients' brain tumor treatment
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To discuss the impact of
brain tumors on individuals, society and the practice of medicine
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To discuss other
intracranial malformations (such as the AVM)
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Information
Subscribe
Topics
Set mail Options
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Hints, Other
Subscription Information,
and Commands
 | The Braintmr mailing list is a group of brain tumor
patients, caregivers and medical professionals who exchange messages on the internet.
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| Everyone is welcome to join.
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| It works via e-mail. When someone from the group sends a message to the
main computer, it is redistributed to the entrie group. If you respond to the message, it
gets sent back to everyone else in the group. As of May 1997, there are about 950 members,
and about 100 messages a day are sent!
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| Detailed instructions will be sent to you when you register.
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| There are no costs involved, other than that of your internet connection
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| EVERYONE who has an interest in brain tumors, either as a patient, patient
caregiver, or medical professional, should join.
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Subscribe
To The Brain Tumor List
For the
e-mail address, make sure you use your full e-mail address, the format that enables you to
get mail from the internet.
For example, AOL users, add "@aol.com" to their screen names.
Compuserve users, replace any commas in the name, and add "@compuserve.com".
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Unsubscribe
Use this form to remove yourself from Braintmr list!
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Set Options
| Use this form to set the available Mail and Topics options.
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| Check EACH option that you want. You can select a choice, or leave a
section blank which means leave it the way it is currently set - whatever that might be!
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| If you are overwhelmed with the volume of mail, review the
"topics" section below - which allows you to customize which messages you will
receive.
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| Remember: enter your e-mail address in a way that the internet can find
you - for example, aol users: myname@aol.com
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| Enter just your e-mail address and don't check any options to get a list
of what your settings currently are!
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| To clear the radiobuttons, hit the refresh button on your browser!
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T.H.E. BRAIN TRUST is established as
a 501(c)(3) nonprofit organization in
the U.S. and requires funding.
Securing financial support for
T.H.E. BRAIN TRUST is essential to facilitate use of the BRAINTMR list and is
urgently needed to make the necessary improvements in service. Hundreds of people have
testified to the dramatic impact this resource has had on their lives. Thousands have
participated.
Please Note: Volunteers who run the ancillary support services for the
BRAINTMR mailing list (and associated lists) are builders of The Healing Exchange BRAIN TRUST
which may provide them with training, equipment, or other resources.
We are an essential service provided to the public for FREE. If you can help with a
donation of any size, would like to organize a fundraiser, or can provide a lead to a
grantmaker or sponsor, please contact us.
The BRAINTMR list has been declared a
KEY RESOURCE for
Neurosurgery on the Internet.
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