Adult Ependymoma Online Support Group

SUMMARY

The Adult Ependymoma Online Support Group is a private email list consisting of over 100 patients and caregivers. The group is hosted by T.H.E. Brain Trust. The size of this group is consistent with the rarity of ependymomas in adults. Our tight-knit, online community is a strong emotional and medical support system. Members have expressed numerous times how invaluable this connection is to their survival in the complicated world of brain tumors. If you or someone special to you has or has had an ependymoma, please join our group!

BECOME A MEMBER

To join our group, please answer the following questions. When completed, please hit submit to send your request to the group facilitator.
(Please fill out every box. If it doesn't apply, type in "N/A".)

The information you enter will be used to introduce you to the members of this group.

If you have difficulty sending the form, please send an email to the facilitator directly.

Send to: adultependy-captain@braintrust.org

Include the following:

Name and current location:
Email address:
Patient's name and current location:
Patient's email address:
Patient's date of birth:
Tumor location:
Treatment types and dates:
Tumor Status and Date of Most Recent MRI :
Neurological deficits:
Current condition:
How you've been affected:


1. Your name and current location
(city, state, country):		  
2. Your email address:  
3. Patient's name and current location:
(city, state, country):		  
4. Patient's email address:  
5. Patient's date of birth:  
6. Specific tumor(s) location:  
7. Treatment types and dates:
8. Tumor Status and Date of Most Recent MRI :  
9. Neurological deficits, if any :  
10. What is your current condition?  
11. Please use the space below to tell us
how you have been affected.
All information will be distributed
only to other members of this group.
Your name and email address will be
used to add you as a member.
The additional information will be
used to introduce you to other members
of this group.